19 April 2016
The Precision Medicine Initiative (PMI) holds the promise of unlocking a new world of personalized care; however, this opportunity does not come without responsibilities—especially when patients are entrusting their most personal data to research organizations and potentially breachable databanks, said Gerard Nussbaum in a recent conversation with HealthITAnalytics.
For example, one of the key problems is the growing disconnect between current patient privacy regulations and the evolving opinions of the public. “The PMI provides a focal point for having discussions about patient privacy, data collection and data usage in a more concrete manner. It is vitally important to talk about what is permitted—not just legally, but in terms of societal acceptance,” says Nussbaum.